INoEA : an international network on EA
6 March 2013
In February 2013, an International network on esophageal atresia (INoEA) was set up by health professionals and researchers working on esophageal atresia.
http://www.inoea.org/
Rationale:
- EA is a rare disease and therefore requires large cohorts from different centres/countries to make progress in understanding the disease, defining standard of care, developing innovative approach, obtaining information on outcome and prognosis
- There have been recently national initiatives (i.e. Canada, France, European Union…) to encourage networks on rare diseases
- Family support groups are active and starting to build international family support group confederation (ie EAT in Europe and Australia)
- There is a need for a multidisciplinary approach of EA (surgeons, neonatologists, prenatal diagnosis health professionals, geneticists, specialized pediatricians (gastro/pulmonologist…), speech therapists, psychologist, nurses…
- The 2 first meetings on EA held in Lille (2010) and Montreal (2012) demonstrated a great interest for such meetings and the need for collaborative work and research projects.
INoEA Aims are:
To organize every 2 years an international meeting on EA
To initiate international consensus and guidelines on EA.
To initiate international collaborative research programs
INoEA organization:
A steering committee including representative of the most active groups in the world to coordinate the activities of the network was created in February 2013
Steering committee:
- Frederic Gottrand (Lille) president (PedGI)
- Christophe Faure (Montreal) vice president (PedGI)
- René Wijnen (Rotterdam) (Pediatric surgeon)
- Arnold Coran (USA) (Pediatric surgeon) Luigi Dall’oglio (Rome) (Pediatric surgeon)
- Risto Rintala (Helsinki) (Pediatric surgeon)
- Robin Cotton (Cincinnati) (ENT)
- Tom Kovesi (Ottawa) (Pediatric pulmonologist)
- Usha Krishnan (Sydney) (PedGI)
Pr F Gottrand
Pôle enfant, Hôpital J de Flandre CHRU de Lille
Inserm U995, IFR114, Faculté de Médecine, Université de Lille2, France
HI
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