Due to the rare nature of esophageal pathologies, research project that aim to improve awareness and the treatment of these pathologies are few and far between. Since 2007, the French Association for esophageal atresia (AFAO – Association Francaise de l’Atresie […] LEARN MORE
Thank you to the adults TOFS members for sharing their experiences and telling their stories. TOFS is the British Support Group www.tofs.org.uk providing support and information to those born with esophageal atresia.
As ERNICA, the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies passes its five-year anniversary we take a look back at how bringing together expert healthcare professionals from across Europe has benefitted the EA community. When […] LEARN MORE
Using a unique methodology to map an esophageal atresia patient’s journey, ERNICA is highlighting key issues and areas of good practice. Esophageal atresia (EA) is a rare congenital condition with an estimated prevalence varying between 1 and 2 in 5,000 […] LEARN MORE
This webinar was presented on Wednesday 26th October 2022 by dr. Eberhard Schmiedeke, paediatric surgeon in Klinikum Bremen-Mitte Germarny and Ms. Dalia Aminoff, head of AIMAR, the Italian patient organisation for ARM (Ano-Rectal Malformations). It is aimed at healthcare professionals, […] LEARN MORE
Graham Slater has been awarded the Esophageal* Atresia World Award from EAT – the federation of member support groups for oesophageal atresia (OA). The award was presented during the recent Quad conference (Sixth international conference on Esophageal Atresia) in Cincinnati. […] LEARN MORE
AndreaConfortia ChiaraPellegrinoa LauraValfréa ChiaraIacussoa PaoloMariSalvatoreSchingob IrmaCapolupoa StefaniaSgro’c LarsRasmussend PietroBagolanae aMedical and Surgical Dept of the Fetus, Newborn and Infant, Bambino Gesù Children’s Hospital IRCCS, , 4, Piazza S. Onofrio, 00165, Rome, Italy bDepartment of […] LEARN MORE
ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies. The network was officially launched in March 2017. ERNICA is a network of expert multi-disciplinary healthcare professionals from specialised healthcare providers across Europe (‘ERNICA members’). ERNICA has 40 member hospitals across 12 EU/EEA […] LEARN MORE
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The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.