News

Prix Fanny-Séléna / Fanny-Séléna Prize 2020 / Call for projects / EA research

08 February 2020

Opening of the research projects application process DOWNLOAD THE APPLICATION FORM HERE – to be sent back to communication.afao@gmail.com before the 8th June 2020 Due to the rare nature of esophageal pathologies, research project that aim to improve awareness and the […] LEARN MORE

AFAO Family days every year, on the last week-end of June…

02 January 2020

Meet and exchange with others, hear personal accounts, attend and participate in workshops, receive and share information and enjoy the entertainment for all in order to learn about, reassure and amuse the younger participants! The weekend program consists of: conferences, […] LEARN MORE

The TOF book

02 January 2020

Most parents and families have never heard of oesophageal atresia (OA) or tracheo-oesophageal fistula (TOF).  Health professionals will try their best to explain the conditioon and the potential consequences for the child but conversations undertaken on the ward or in […] LEARN MORE

5th International Conference on Esophageal Atresia, INoEA-FATE

02 January 2020

Thank you to Christophe Faure, MD, Division of Pediatric Gastroenterology, Sainte-Justine Hospital in Montréal, Canada for submitting this meeting review. Esophageal atresia (EA) is among the most common congenital digestive malformations, affecting 1 in 3,000 infants at birth. Since the first […] LEARN MORE

TOFS Video/easy-to-understand introduction to TEF/EA

01 January 2020

This short animation is a comforting and easily followed introduction to TOF/OA.  The terms are clearly explained in a down-to-earth way and there is an overview of what this might mean for your child. It’s creator, Vicki Martin, is an […] LEARN MORE

ERNICA Consensus Conference on the Management of Patients with Esophageal Atresia and Tracheoesophageal Fistula: Diagnostics, Preoperative, Operative, and Postoperative Management.

01 January 2020

Eur J Pediatr Surg. 2019 Nov 27 Abstract INTRODUCTION: Many aspects of the management of esophageal atresia (EA) and tracheoesophageal fistula (TEF) are controversial and the evidence for decision making is limited. Members of the European Reference Network for Rare […] LEARN MORE

Comète : a symbolic Yule log to finance research on esophageal atresia.

01 January 2020

It’s been 10 years since the pastry chef Jérôme De Oliveira joined the French families support group AFAO of which he is the godfather. A recognized association of general interest accredited by the French Ministry of Solidarity and Health that […] LEARN MORE

Esophageal atresia patient journey workshop

01 January 2020

Further progress was made on the esophageal atresia ‘Patient Journey’ project at a workshop held in Berlin on November 15, 2019. This project has a multidisciplinary team with its membership drawn from surgery, nursing and patient representatives. The project has […] LEARN MORE