News

Children’s book Havva, the giraffe that can’t eat leaves.

10 July 2019

When our beautiful twins, son Mats and daughter Jinte, were born in December 2011, we were in for a great shock. Within a few hours after his birth, Mats was diagnosed with an esophageal atresia and VACTERL. He had to […] LEARN MORE

Useful TOF/OA Terms in various languages

07 August 2018

Terminology Glossary English Turkish Terminology Glossary English Spanish Terminology Glossary English Russian Terminology Glossary English Polish Terminology Glossary English Italian Terminology Glossary English German Terminology Glossary English French Terminology Glossary English Dutch

ERNICA has launched its website !

06 August 2018

https://ern-ernica.eu/ The European Reference Network for Rare Inherited Congenital Anomalies (ERNICA) was officially established in March 2017 and is one of 24 European Reference Networks co-funded by the European Union (Health Programme). ERNICA involves teams from 20 European hospitals from 10 […] LEARN MORE