News

Understanding Esophageal Atresia as a Lifelong Condition

10 May 2024

Esophageal Atresia as a Lifelong Condition Recent research has reshaped our understanding of Esophageal Atresia (EA), portraying it as a lifelong condition. Spearheaded by Mélanie Leroy, PhD, and her team, this study illuminates the myriad challenges confronted by individuals living […] LEARN MORE

Bronchiectasis Patient Conference 2024 picture

Bronchiectasis Patient Conference 2024

18 March 2024

Join us on Saturday 23 March 2024 from 10:00-16.00 CET for our free, online annual bronchiectasis patient conference. There will be a mix of live talks and videos from both bronchiectasis patients and medical experts on: Basic overview for those […] LEARN MORE

Picture with information of the joint meeting of INoEA, PAAFIS and the Aerodigestive society

INoEA, PAAFIS and Aerodigestive Society will hold joint meeting

10 February 2024

The joint meeting of the International Network of Esophageal Atresia (INoEA), the Pediatric, Adolescent and Adult Foregut Interdisciplinary Society (PAAFIS), and the Aerodigestive Society will be held in Istanbul Türkiye between April 30th and May 3rd, 2025. The Turkish Association […] LEARN MORE

The Work of EAT e.V. in ERNICA, the European Network for Rare Inherited and Congenital Anomalies

29 August 2023

ERNICA is the European Reference Network for rare hereditary and congenital anomalies of the digestive and gastrointestinal tract. European Reference Networks (ERNs) are networks of healthcare professionals from specialised healthcare providers in the European Union (EU) and the European Economic […] LEARN MORE

The International Network on Oesophageal Atresia (INoEA) consensus guidelines on the transition of patients with oesophageal atresia–tracheoesophageal fistula

17 June 2023

View article The Transition Working Group of the International Network on Oesophageal Atresia (INoEA) was charged with the task of developing uniform evidence-based guidelines for the management of complications through the transition from adolescence into adulthood. Forty-two questions addressing the […] LEARN MORE

We were born with EA/TEF: testimonies from adults born with EA/TEF

03 March 2023

Thank you to the adults TOFS members for sharing their experiences and telling their stories. TOFS is the British Support Group   www.tofs.org.uk  providing support and information to those born with esophageal atresia.  

Five years of ERNICA

27 November 2022

As ERNICA, the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies passes its five-year anniversary we take a look back at how bringing together expert healthcare professionals from across Europe has benefitted the EA  community. When […] LEARN MORE