News

How to Put on and Remove a Face Mask? / COVID19

06 May 2020

Video from https://www.youtube.com/user/CHUdeNantes/videos How to put on a face mask? Clean your hands with soap and water or hand sanitizer before touching the mask. Remove a mask from the box and make sure there are no obvious tears or holes […] LEARN MORE

EAT General Assembly April 2020

06 May 2020

20 representants of 11 different countries (from 4 continents) were present at the last general assembly in April 2020 (zoom meeting). EAT, an international federation for families concerned with esophageal atresia, is always on the board #exchange #collaboration #information

Useful EA terms in various languages

05 May 2020

Terminology Glossary Turkish Spanish   Swedish   Italian  German   French  Dutch Swedish  

A patient journey for an esophageal atresia patient: the proposal of ERNICA

02 May 2020

Article from the ERN-wide European Commission newsletter Using a unique methodology to map an esophageal atresia patient’s journey, ERNICA is highlighting key issues and areas of good practice. Esophageal atresia (EA) is a rare congenital condition with an estimated prevalence […] LEARN MORE

Esophageal Atresia COVID-19 – EAT – Patient reported outcomes study

16 April 2020

The COVID-19 Coronavirus is already the subject of scientific and medical research and we can expect more studies to be commissioned. Many of these studies will consider the epidemiological aspects of the virus and there will also be clinical studies […] LEARN MORE

ERNICA COVID-19 statement

06 April 2020

Extract from  Ernica  website Posted on 02 April 2020 The current situation with the COVID-19 pandemic is a significant global challenge. We understand that patients with rare inherited congenital digestive (and gastrointestinal) disorders and their families may have concerns about their […] LEARN MORE

Coronavirus / advice from TOFS website

27 March 2020

Thanks a lot to TOFS for this article We understand that many people born with EA/TEF (and families of those born with the conditions) are concerned about the fast-evolving situation caused by the coronavirus. What is COVID-19? COVID-19 is the […] LEARN MORE

Information sources related to COVID-19

11 March 2020

We are all concerned about the fast-evolving situation surrounding COVID-19. This outbreak can cause stress, especially for the more vulnerable members of our community. Here are  a list of official sources of information: Don’t hesitate to share this with your […] LEARN MORE