Survey: Unmet needs of rare and complex diseases related to pregnancy and family planning for patients and caregivers

25 May 2022

An ERN ReCONNECT working group* focused on pregnancy and family planning, launched a survey to capture patients’ and caregivers’ unmet needs related to pregnancy and family planning. The survey is directed to patients with rare and complex diseases (and their caregivers) […] LEARN MORE

Survey: emotional well-being and support groups

04 May 2022

All parents/patients affected by esophageal atresia may participate in this survey. Data collected will be used as part of a PhD study link to Stellenbosch University, South Africa.  The study has been approved by the Health Research Ethics Committee of Stellenbosch […] LEARN MORE

AFAO research prize 2022

22 February 2022

Due to the rare nature of esophageal pathologies, research project that aim to improve awareness and the treatment of these pathologies are few and far between. Since 2007, the French Association for esophageal atresia (AFAO – Association Francaise de l’Atresie […] LEARN MORE

Graham Slater holding his award

Graham Slater, former chairman of EAT, receives the Black Pearl Volunteer Award 2022

26 January 2022

We are delighted to announce that Graham Slater, the former president of our organization, received the EURORDIS Black Pearl Volunteer Award. The Black Pearl Awards recognize the outstanding achievements and exceptional work of people making a difference for the rare disease […] LEARN MORE

The OA Kid’s Story: A Story Book Explaining Oesophageal Atresia for Children

The OA Kid’s Story: A Story Book Explaining Esophageal Atresia for Children

30 December 2021

Professor Usha Krishnan, Director of Motility Services and Oesophageal Atresia Clinic at Sydney Children’s Hospital and member of the EAT medical advisory board published a child-friendly book explaining esophageal atresia. The book is aimed at the 7 to 12 year […] LEARN MORE

Innovation: Aid simulator for families (AFAO)

11 December 2021

As a privileged partner of the Reference Center for Chronic and Malformative Conditions of the Esophagus (CRACMO), the French Association for Esophageal Atresia (AFAO) has developed in 2021, with the support of the Health Insurance (National Fund for Health Democracy), a financial and […] LEARN MORE

Useful EA terms in various languages

30 July 2021

Terminology glossar on esophageal atresia                       Terminology glossar on esophageal atresia  

The TOF Book

26 July 2021

Most people have never heard of oesophageal atresia (OA) or tracheo-oesophageal fistula (TOF) and Internet sourced information can be questionable and neither filtered nor put into context. Containing contributions written by medical experts, this is where The TOF Book comes […] LEARN MORE