AFAO Research Prize 2023 / Call for application.

03 March 2023

Due to the rare nature of esophageal pathologies, research project that aim to improve awareness and the treatment of these pathologies are few and far between. Since 2007, the French Association for esophageal atresia (AFAO – Association Francaise de l’Atresie […] LEARN MORE

We were born with EA/TEF: testimonies from adults born with EA/TEF

03 March 2023

Thank you to the adults TOFS members for sharing their experiences and telling their stories. TOFS is the British Support Group  providing support and information to those born with esophageal atresia.  

Five years of ERNICA

27 November 2022

As ERNICA, the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies passes its five-year anniversary we take a look back at how bringing together expert healthcare professionals from across Europe has benefitted the EA  community. When […] LEARN MORE

A patient journey for an esophageal atresia patient

26 November 2022

Using a unique methodology to map an esophageal atresia patient’s journey, ERNICA is highlighting key issues and areas of good practice. Esophageal atresia (EA) is a rare congenital condition with an estimated prevalence varying between 1 and 2 in 5,000 […] LEARN MORE

Advantages of centralization of care

01 November 2022

This webinar was presented on Wednesday 26th October 2022 by dr. Eberhard Schmiedeke, paediatric surgeon in Klinikum Bremen-Mitte Germarny and Ms. Dalia Aminoff, head of AIMAR, the Italian patient organisation for ARM (Ano-Rectal Malformations). It is aimed at healthcare professionals, […] LEARN MORE

Graham Slater awarded the Esophageal Atresia World Award in Cincinnati

25 October 2022

  Graham Slater has been awarded the Esophageal* Atresia World Award from EAT – the federation of member support groups for oesophageal atresia (OA). The award was presented during the recent Quad conference (Sixth international conference on Esophageal Atresia) in Cincinnati. […] LEARN MORE

Magnamosis for long gap esophageal atresia: Minimally invasive “Fatal Attraction”

25 October 2022

AndreaConfortia      ChiaraPellegrinoa    LauraValfréa   ChiaraIacussoa   PaoloMariSalvatoreSchingob  IrmaCapolupoa StefaniaSgro’c   LarsRasmussend   PietroBagolanae aMedical and Surgical Dept of the Fetus, Newborn and Infant, Bambino Gesù Children’s Hospital IRCCS, , 4, Piazza S. Onofrio, 00165, Rome, Italy bDepartment of […] LEARN MORE

ERNICA consensus conferences

25 September 2022

ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies. The network was officially launched in March 2017. ERNICA is a network of expert multi-disciplinary healthcare professionals from specialised healthcare providers across Europe (‘ERNICA members’). ERNICA has 40 member hospitals across 12 EU/EEA […] LEARN MORE