ERNICA COVID-19 statement

06 April 2020

Extract from  Ernica  website Posted on 02 April 2020 The current situation with the COVID-19 pandemic is a significant global challenge. We understand that patients with rare inherited congenital digestive (and gastrointestinal) disorders and their families may have concerns about their […] LEARN MORE

Coronavirus / advice from TOFS website

27 March 2020

Thanks a lot to TOFS for this article We understand that many people born with EA/TEF (and families of those born with the conditions) are concerned about the fast-evolving situation caused by the coronavirus. What is COVID-19? COVID-19 is the […] LEARN MORE

Information sources related to COVID-19

11 March 2020

We are all concerned about the fast-evolving situation surrounding COVID-19. This outbreak can cause stress, especially for the more vulnerable members of our community. Here are  a list of official sources of information: Don’t hesitate to share this with your […] LEARN MORE

Prix Fanny-Séléna / Fanny-Séléna Prize 2020 / Call for projects / EA research

08 February 2020

Opening of the research projects application process DOWNLOAD THE APPLICATION FORM HERE – to be sent back to before the 8th June 2020 Due to the rare nature of esophageal pathologies, research project that aim to improve awareness and the […] LEARN MORE

AFAO Family days every year, on the last week-end of June…

02 January 2020

Meet and exchange with others, hear personal accounts, attend and participate in workshops, receive and share information and enjoy the entertainment for all in order to learn about, reassure and amuse the younger participants! The weekend program consists of: conferences, […] LEARN MORE

The TOF book

02 January 2020

Most parents and families have never heard of oesophageal atresia (OA) or tracheo-oesophageal fistula (TOF).  Health professionals will try their best to explain the conditioon and the potential consequences for the child but conversations undertaken on the ward or in […] LEARN MORE

5th International Conference on Esophageal Atresia, INoEA-FATE

02 January 2020

Thank you to Christophe Faure, MD, Division of Pediatric Gastroenterology, Sainte-Justine Hospital in Montréal, Canada for submitting this meeting review. Esophageal atresia (EA) is among the most common congenital digestive malformations, affecting 1 in 3,000 infants at birth. Since the first […] LEARN MORE

TOFS Video/easy-to-understand introduction to TEF/EA

01 January 2020

This short animation is a comforting and easily followed introduction to TOF/OA.  The terms are clearly explained in a down-to-earth way and there is an overview of what this might mean for your child. It’s creator, Vicki Martin, is an […] LEARN MORE