The International Network of Esophageal Atresia, Respiratory Complications Working Group has published a new article to “provide a framework for the diagnosis and management of the respiratory complications that are associated with the [Tracheoesophageal fistula (TEF) with esophageal atresia (EA)]. […] LEARN MORE
In France, on behalf of the Health Affaires Ministry, the Reference Center on EA, created in 2009 a personal document titled “Emergency and Health Card”. It was updated in 2019. This emergency card is delivered after birth to each infant […] LEARN MORE
CRACMO is the French Reference Center for Congenital Esophageal abnormalities. It was founded in 2006 as part of the National Rare Disease Charter and is based in Lille University Hospital. This hospital has vast experience in surgery and multidisciplinary outpatient […] LEARN MORE
Article from the ERN-wide European Commission newsletter Using a unique methodology to map an esophageal atresia patient’s journey, ERNICA is highlighting key issues and areas of good practice. Esophageal atresia (EA) is a rare congenital condition with an estimated prevalence […] LEARN MORE
Eur J Pediatr Surg. 2019 Nov 27 Abstract INTRODUCTION: Many aspects of the management of esophageal atresia (EA) and tracheoesophageal fistula (TEF) are controversial and the evidence for decision making is limited. Members of the European Reference Network for Rare […] LEARN MORE
The 2nd ERNICA consensus conference on the Perioperative, Surgical and Long-term Management of Patients with Long-gap Esophageal Atresia took place in Berlin on the 13th and 14th November 2019. After an extensive literature search and preparation, relevant aspects regarding the […] LEARN MORE
INoEA is the International Network of Esophageal Atresia and consists of a broad spectrum of pediatric specialties and patient societies. The working group on long-gap esophageal atresia (LGEA) set out to develop guidelines regarding the definition of LGEA, the best […] LEARN MORE
The Esophageal and Airway Treatment (EAT) Center at Boston Children’s Hospital cares for infants, children and young adults with esophageal and airway problems