View article The Transition Working Group of the International Network on Oesophageal Atresia (INoEA) was charged with the task of developing uniform evidence-based guidelines for the management of complications through the transition from adolescence into adulthood. Forty-two questions addressing the […] LEARN MORE
As ERNICA, the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies passes its five-year anniversary we take a look back at how bringing together expert healthcare professionals from across Europe has benefitted the EA community. When […] LEARN MORE
Using a unique methodology to map an esophageal atresia patient’s journey, ERNICA is highlighting key issues and areas of good practice. Esophageal atresia (EA) is a rare congenital condition with an estimated prevalence varying between 1 and 2 in 5,000 […] LEARN MORE
Led by the CRACMO*, the TransEAsome project provides the long term follow-up of children operated from esophageal atresia until they are 13-14 years old. In addition to monitoring, a biobank will be incorporated with esophageal biopsies performed during endoscopies and […] LEARN MORE
This webinar was presented on Wednesday 26th October 2022 by dr. Eberhard Schmiedeke, paediatric surgeon in Klinikum Bremen-Mitte Germarny and Ms. Dalia Aminoff, head of AIMAR, the Italian patient organisation for ARM (Ano-Rectal Malformations). It is aimed at healthcare professionals, […] LEARN MORE
AndreaConfortia ChiaraPellegrinoa LauraValfréa ChiaraIacussoa PaoloMariSalvatoreSchingob IrmaCapolupoa StefaniaSgro’c LarsRasmussend PietroBagolanae aMedical and Surgical Dept of the Fetus, Newborn and Infant, Bambino Gesù Children’s Hospital IRCCS, , 4, Piazza S. Onofrio, 00165, Rome, Italy bDepartment of […] LEARN MORE
ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies. The network was officially launched in March 2017. ERNICA is a network of expert multi-disciplinary healthcare professionals from specialised healthcare providers across Europe (‘ERNICA members’). ERNICA has 40 member hospitals across 12 EU/EEA […] LEARN MORE
INoEA is the international organization for all professionals working in the field of esophageal atresia and taking care of patients (neonates, infants, children, adolescents and adults) born with esophageal atresia. This network was set up by health professionals and researchers working on […] LEARN MORE