Innovative care management

Care recommendations for the respiratory complications of esophageal atresia-tracheoesophageal fistula

26 October 2020

The International Network of Esophageal Atresia, Respiratory Complications Working Group has published a new article to “provide a framework for the diagnosis and management of the respiratory complications that are associated with the [Tracheoesophageal fistula (TEF) with esophageal atresia (EA)]. […] LEARN MORE

Emergency and Health Card for EA patients

31 August 2020

In France, on behalf of the Health Affaires Ministry, the Reference Center on EA, created in 2009 a personal document titled “Emergency and Health Card”. It was updated in 2019. This emergency card is delivered after birth to each infant […] LEARN MORE

A National Reference Center in France : CRACMO

31 August 2020

CRACMO is the French Reference Center for Congenital Esophageal abnormalities. It was founded in 2006 as part of the National Rare Disease Charter and is based in Lille University Hospital. This hospital has vast experience in surgery and multidisciplinary outpatient […] LEARN MORE

A patient journey for an esophageal atresia patient: the proposal of ERNICA

02 May 2020

Article from the ERN-wide European Commission newsletter Using a unique methodology to map an esophageal atresia patient’s journey, ERNICA is highlighting key issues and areas of good practice. Esophageal atresia (EA) is a rare congenital condition with an estimated prevalence […] LEARN MORE

ERNICA Consensus Conference on the Management of Patients with Esophageal Atresia and Tracheoesophageal Fistula: Diagnostics, Preoperative, Operative, and Postoperative Management.

01 January 2020

Eur J Pediatr Surg. 2019 Nov 27 Abstract INTRODUCTION: Many aspects of the management of esophageal atresia (EA) and tracheoesophageal fistula (TEF) are controversial and the evidence for decision making is limited. Members of the European Reference Network for Rare […] LEARN MORE

2nd ERNICA consensus conference: “Long-gap Esophageal Atresia: Perioperative, Surgical and Long-term Management”

01 January 2020

The 2nd ERNICA consensus conference on the Perioperative, Surgical and Long-term Management of Patients with Long-gap Esophageal Atresia took place in Berlin on the 13th and 14th November 2019. After an extensive literature search and preparation, relevant aspects regarding the […] LEARN MORE

Position Paper of iNoeA Working Group on Long-Gap esophageal Atresia: For Better care

07 August 2019

INoEA is the International Network of Esophageal Atresia and consists of a broad spectrum of pediatric specialties and patient societies. The working group on long-gap esophageal atresia (LGEA) set out to develop guidelines regarding the definition of LGEA, the best […] LEARN MORE

Esophageal and Airway Treatment Center (EAT) | Boston Children’s Hospital

31 December 2017

The Esophageal and Airway Treatment (EAT) Center at Boston Children’s Hospital cares for infants, children and young adults with esophageal and airway problems