Innovative care management

Five years of ERNICA

27 November 2022

As ERNICA, the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies passes its five-year anniversary we take a look back at how bringing together expert healthcare professionals from across Europe has benefitted the EA  community. When […] LEARN MORE

A patient journey for an esophageal atresia patient

26 November 2022

Using a unique methodology to map an esophageal atresia patient’s journey, ERNICA is highlighting key issues and areas of good practice. Esophageal atresia (EA) is a rare congenital condition with an estimated prevalence varying between 1 and 2 in 5,000 […] LEARN MORE

The transEAsome project

01 November 2022

Led by the CRACMO*, the TransEAsome project provides the long term follow-up of children operated from esophageal atresia until they are 13-14 years old. In addition to monitoring, a biobank will be incorporated with esophageal biopsies performed during endoscopies and […] LEARN MORE

Advantages of centralization of care

01 November 2022

This webinar was presented on Wednesday 26th October 2022 by dr. Eberhard Schmiedeke, paediatric surgeon in Klinikum Bremen-Mitte Germarny and Ms. Dalia Aminoff, head of AIMAR, the Italian patient organisation for ARM (Ano-Rectal Malformations). It is aimed at healthcare professionals, […] LEARN MORE

Magnamosis for long gap esophageal atresia: Minimally invasive “Fatal Attraction”

25 October 2022

AndreaConfortia      ChiaraPellegrinoa    LauraValfréa   ChiaraIacussoa   PaoloMariSalvatoreSchingob  IrmaCapolupoa StefaniaSgro’c   LarsRasmussend   PietroBagolanae aMedical and Surgical Dept of the Fetus, Newborn and Infant, Bambino Gesù Children’s Hospital IRCCS, , 4, Piazza S. Onofrio, 00165, Rome, Italy bDepartment of […] LEARN MORE

ERNICA consensus conferences

25 September 2022

ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies. The network was officially launched in March 2017. ERNICA is a network of expert multi-disciplinary healthcare professionals from specialised healthcare providers across Europe (‘ERNICA members’). ERNICA has 40 member hospitals across 12 EU/EEA […] LEARN MORE

Guidelines and position papers endorsed and supported by INoEA

10 September 2022

INoEA is the international organization for all professionals working in the field of esophageal atresia and taking care of patients (neonates, infants, children, adolescents and adults) born with esophageal atresia. This network was set up by health professionals and researchers working on […] LEARN MORE

Care recommendations for the respiratory complications of esophageal atresia-tracheoesophageal fistula

26 October 2020

The International Network of Esophageal Atresia, Respiratory Complications Working Group has published a new article to “provide a framework for the diagnosis and management of the respiratory complications that are associated with the [Tracheoesophageal fistula (TEF) with esophageal atresia (EA)]. […] LEARN MORE