Resources for health professionals

The TOF book

02 January 2020

Most parents and families have never heard of oesophageal atresia (OA) or tracheo-oesophageal fistula (TOF).  Health professionals will try their best to explain the conditioon and the potential consequences for the child but conversations undertaken on the ward or in […] LEARN MORE

TOFS Video/easy-to-understand introduction to TEF/EA

01 January 2020

This short animation is a comforting and easily followed introduction to TOF/OA.  The terms are clearly explained in a down-to-earth way and there is an overview of what this might mean for your child. It’s creator, Vicki Martin, is an […] LEARN MORE

ERNICA Consensus Conference on the Management of Patients with Esophageal Atresia and Tracheoesophageal Fistula: Diagnostics, Preoperative, Operative, and Postoperative Management.

01 January 2020

Eur J Pediatr Surg. 2019 Nov 27 Abstract INTRODUCTION: Many aspects of the management of esophageal atresia (EA) and tracheoesophageal fistula (TEF) are controversial and the evidence for decision making is limited. Members of the European Reference Network for Rare […] LEARN MORE

Esophageal atresia patient journey workshop

01 January 2020

Further progress was made on the esophageal atresia ‘Patient Journey’ project at a workshop held in Berlin on November 15, 2019. This project has a multidisciplinary team with its membership drawn from surgery, nursing and patient representatives. The project has […] LEARN MORE

Position Paper of iNoeA Working Group on Long-Gap esophageal Atresia: For Better care

07 August 2019

INoEA is the International Network of Esophageal Atresia and consists of a broad spectrum of pediatric specialties and patient societies. The working group on long-gap esophageal atresia (LGEA) set out to develop guidelines regarding the definition of LGEA, the best […] LEARN MORE

Professor Cattan talk about Tissue Engineering

10 July 2019

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Esophageal tissue engineering: from bench to bedside

17 August 2018

For various esophageal diseases, the search for alternative techniques for tissue repair has led to significant developments in basic and translational research in the field of tissue engineering. Applied to the esophagus, this concept is based on the in vitro […] LEARN MORE

ERNICA has launched its website !

06 August 2018

https://ern-ernica.eu/ The European Reference Network for Rare Inherited Congenital Anomalies (ERNICA) was officially established in March 2017 and is one of 24 European Reference Networks co-funded by the European Union (Health Programme). ERNICA involves teams from 20 European hospitals from 10 […] LEARN MORE