The STEPS-EA trial is an ERNICA multi-centre randomised controlled trial looking at intralesional steroid injections to prevent refractory strictures in patients with esophageal atresia. The trial involves 1:1 randomization to injection with 10 mg/ml TAC (Kenacort-A 10) prior to balloon dilatation […] LEARN MORE
CAN EAT – Care and Nutrition in Esophageal Atresia – The European Reference Networks for rare diseases – Inherited and Congenital Anomalies (ERNICA) produced an animation that aims to help patients and their families to understand esophageal atresia. The video […] LEARN MORE
Extract from Ernica website Posted on 02 April 2020 The current situation with the COVID-19 pandemic is a significant global challenge. We understand that patients with rare inherited congenital digestive (and gastrointestinal) disorders and their families may have concerns about their […] LEARN MORE
Further progress was made on the esophageal atresia ‘Patient Journey’ project at a workshop held in Berlin on November 15, 2019. This project has a multidisciplinary team with its membership drawn from surgery, nursing and patient representatives. The project has […] LEARN MORE
https://ern-ernica.eu/ The European Reference Network for Rare Inherited Congenital Anomalies (ERNICA) was officially established in March 2017 and is one of 24 European Reference Networks co-funded by the European Union (Health Programme). ERNICA involves teams from 20 European hospitals from 10 […] LEARN MORE
ERNICA is a European Reference Network (ERN) which addresses congenital malformations and diseases that appear early in life and require multidisciplinary care and long-term follow-up, and examines the transition to adulthood ERNICA will focus initially on congenital gastro-intestinal (GI) diseases […] LEARN MORE
Presentation by the European Commission of the European Reference Networks 2017_brochure_en
ERNICA is a European Reference Network (ERN) which addresses congenital malformations and diseases that appear early in life and require multidisciplinary care and long-term follow-up, and examines the transition to adulthood. What will ERNICA do? ERNICA will focus initially on […] LEARN MORE
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The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.