EA professional networks

Esophageal atresia patient journey workshop

01 January 2020

Further progress was made on the esophageal atresia ‘Patient Journey’ project at a workshop held in Berlin on November 15, 2019. This project has a multidisciplinary team with its membership drawn from surgery, nursing and patient representatives. The project has […] LEARN MORE

ERNICA has launched its website !

06 August 2018

https://ern-ernica.eu/ The European Reference Network for Rare Inherited Congenital Anomalies (ERNICA) was officially established in March 2017 and is one of 24 European Reference Networks co-funded by the European Union (Health Programme). ERNICA involves teams from 20 European hospitals from 10 […] LEARN MORE

Centers members of ERNICA

01 April 2017

ERNICA is a European Reference Network (ERN) which addresses congenital malformations and diseases that appear early in life and require multidisciplinary care and long-term follow-up, and examines the transition to adulthood ERNICA will focus initially on congenital gastro-intestinal (GI) diseases […] LEARN MORE

Learn more on European Reference Networks

01 April 2017

Presentation by the European Commission of  the European Reference Networks 2017_brochure_en

ERNICA: an European reference network which focuses mainly on EA

08 March 2017

ERNICA is a European Reference Network (ERN) which addresses congenital malformations and diseases that appear early in life and require multidisciplinary care and long-term follow-up, and examines the transition to adulthood. What will ERNICA do? ERNICA will focus initially on […] LEARN MORE

Getting ready for an EA European Reference Networks?

26 August 2015

Yann Le Cam, Eurordis Chief Executive Officer and Matt Johnson, Healthcare and Research Director presented  in May during an Eurordis webinar the European Reference Networks project. Video of the webinar, including presentation and 1 hour Q&A (please allow 1 minute to […] LEARN MORE

INoEA : an international network on EA

06 March 2013

In February 2013, an International network on esophageal atresia  (INoEA) was set up by health professionals and researchers working on esophageal atresia. http://www.inoea.org/ Rationale: EA is a rare disease and therefore requires large cohorts from different centres/countries to make progress […] LEARN MORE