An ERN ReCONNECT working group* focused on pregnancy and family planning, launched a survey to capture patients’ and caregivers’ unmet needs related to pregnancy and family planning. The survey is directed to patients with rare and complex diseases (and their caregivers) […] LEARN MORE
All parents/patients affected by esophageal atresia may participate in this survey. Data collected will be used as part of a PhD study link to Stellenbosch University, South Africa. The study has been approved by the Health Research Ethics Committee of Stellenbosch […] LEARN MORE
The STEPS-EA trial is an ERNICA multi-centre randomised controlled trial looking at intralesional steroid injections to prevent refractory strictures in patients with esophageal atresia. The trial involves 1:1 randomization to injection with 10 mg/ml TAC (Kenacort-A 10) prior to balloon dilatation […] LEARN MORE
Surgical endoscopy, 2020 Aug Chantal A. ten Kate1 · Renato Tambucci2 · John Vlot1 · Manon C. W. Spaander3 · Frederic Gottrand4 · Rene M. H. Wijnen1 · Luigi Dall’Oglio2Received: 8 April 2020 / Accepted: 24 July 2020 © The […] LEARN MORE
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Esophageal replacement by the colon or the stomach for malignant and nonmalignant esophageal diseases exposes to significant morbidity and mortality. In this setting, tissue engineering seems to be a seductive alternative. Methods. In a porcine model, we performed a 5-cm-long […] LEARN MORE