Using a unique methodology to map an esophageal atresia patient’s journey, ERNICA is highlighting key issues and areas of good practice. Esophageal atresia (EA) is a rare congenital condition with an estimated prevalence varying between 1 and 2 in 5,000 […] LEARN MORE
Graham Slater has been awarded the Esophageal* Atresia World Award from EAT – the federation of member support groups for oesophageal atresia (OA). The award was presented during the recent Quad conference (Sixth international conference on Esophageal Atresia) in Cincinnati. […] LEARN MORE
In November 2021, Louise received the Edelweiss Award in the category “Représentant de patient” from Radiorg (Radiorog is a non-profit alliance of rare disease patient organisations located in Belgium) . Louise is 14 years old and was born with an […] LEARN MORE
As a privileged partner of the Reference Center for Chronic and Malformative Conditions of the Esophagus (CRACMO), the French Association for Esophageal Atresia (AFAO) has developed in 2021, with the support of the Health Insurance (National Fund for Health Democracy), a financial and […] LEARN MORE
Terminology glossar on esophageal atresia Terminology glossar on esophageal atresia
Most people have never heard of oesophageal atresia (OA) or tracheo-oesophageal fistula (TOF) and Internet sourced information can be questionable and neither filtered nor put into context. Containing contributions written by medical experts, this is where The TOF Book comes […] LEARN MORE
This short animation is a comforting and easily followed introduction to TOF/OA. The terms are clearly explained in a down-to-earth way and there is an overview of what this might mean for your child. It’s creator, Vicki Martin, is an […] LEARN MORE
TOFS in the UK is having an ‘Awareness Week’ for esophageal atresia from Monday March 15 until March 21. This is deliberately coincidental with International Swallowing Awareness Day on Wednesday 17 March, and the NHS (National Health Service) England Nutrition and […] LEARN MORE
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The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.
The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.