The youngest of Anke’ three children was born in 1999 with long gap EA.
Counselling the parents of children born with EA and the transition from paediatric to adult care are her particular EA interests.
In ERNICA, Anke is a Lead patient representative of the Esophageal Diseases work stream.
E-mail : awg@keks.org
JoAnne Fruithof is a board member of VOKS, the Dutch support group for people with EA.
She has three children. Her middle son, born in 2006, was born with EA. She lives in Hellendoorn. In daily life she is a veterinarian.
E-mail: Jfruithof@gmail.com
Bernhard is a journalist and entrepreneur, based in Rome.
He continues to tap his vast newsroom experience to help communicate and promote EAT’s many achievements globally. He is a founding member of the Italian EA support group, FATE, or l’Associazione Famiglie con Atresia Esofagea. He is married, and is the father of twin girls.
E-mail: bwarner@gmail.com
Evelyn Svoboda-Siebenpfund is a former board member of KEKS Germany, the German EA support group. She also founded the Swiss section of KEKS (OA-Switzerland).
Evelyn has four children; her youngest daughter was born with long gap EA in 1996.
She lives in Aesch near Basle and is working for the children and adults protection authority. She holds a master’s degree in law from the University of Basle.
E-mail: Evelyn.svoboda62@gmail.com
Frédéric Armand is the EAT Board member responsible for the EAT web site and social networking (EAT twitter and EAT facebook). Frédéric is one of the co-founders of the French EA support group AFAO.
Frédéric is the father of two boys, one of whom was born with long gap EA.
He is a Biology teacher and lives in Paris.
E-mail: armafred@orange.fr
Julia is a member of the medical advisory group for TOFS. In her professional life she works as a paediatric dietitian.
She has two children, her oldest was born in 2014 with EA.
Julia has contributed from a patient and professional perspective to the ERNICA patient journey project, most notably the ‘CAN EAT’ animation.
E-mail: Juliarfaulkner@gmail.com
Eva is the vice-president of ATE since 2017, the Spanish EA support group.
She has 2 children, the youngest was born with long-gap EA in 2011.
Her proffessional career is strongly linked to healthcare working for more than 15 years on Pharmaceutical companies, focused on helping health care providers and patients.
She lives in Madrid, Spain.
18/08/2021
We comply with the HONcode standard for health trustworthy information
We are grateful for the financial support of EAT website
The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.