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AFAO Research Prize 2023 / Call for application.

03 March 2023

Due to the rare nature of esophageal pathologies, research project that aim to improve awareness and the treatment of these pathologies are few and far between. Since 2007, the French Association for esophageal atresia (AFAO – Association Francaise de l’Atresie […] LEARN MORE

A patient journey for an esophageal atresia patient

26 November 2022

Using a unique methodology to map an esophageal atresia patient’s journey, ERNICA is highlighting key issues and areas of good practice. Esophageal atresia (EA) is a rare congenital condition with an estimated prevalence varying between 1 and 2 in 5,000 […] LEARN MORE

Graham Slater awarded the Esophageal Atresia World Award in Cincinnati

25 October 2022

  Graham Slater has been awarded the Esophageal* Atresia World Award from EAT – the federation of member support groups for oesophageal atresia (OA). The award was presented during the recent Quad conference (Sixth international conference on Esophageal Atresia) in Cincinnati. […] LEARN MORE

In November 2021, Louise received the Edelweiss Award.

25 August 2022

In November 2021, Louise  received the Edelweiss Award in the category “Représentant de patient” from Radiorg (Radiorog is a non-profit alliance of rare disease patient organisations located in Belgium) . Louise is 14 years old and was born with an […] LEARN MORE

Innovation: Aid simulator for families (AFAO)

11 December 2021

As a privileged partner of the Reference Center for Chronic and Malformative Conditions of the Esophagus (CRACMO), the French Association for Esophageal Atresia (AFAO) has developed in 2021, with the support of the Health Insurance (National Fund for Health Democracy), a financial and […] LEARN MORE

Useful EA terms in various languages

30 July 2021

Terminology glossar on esophageal atresia                       Terminology glossar on esophageal atresia  

The TOF Book

26 July 2021

Most people have never heard of oesophageal atresia (OA) or tracheo-oesophageal fistula (TOF) and Internet sourced information can be questionable and neither filtered nor put into context. Containing contributions written by medical experts, this is where The TOF Book comes […] LEARN MORE

TOFS Video/easy-to-understand introduction to TEF/EA

01 June 2021

This short animation is a comforting and easily followed introduction to TOF/OA.  The terms are clearly explained in a down-to-earth way and there is an overview of what this might mean for your child. It’s creator, Vicki Martin, is an […] LEARN MORE