Support groups actions

Prix Fanny-Séléna / Fanny-Séléna Prize 2020 / Call for projects / EA research

08 February 2020

Opening of the research projects application process DOWNLOAD THE APPLICATION FORM HERE – to be sent back to before the 8th June 2020 Due to the rare nature of esophageal pathologies, research project that aim to improve awareness and the […] LEARN MORE

AFAO Family days every year, on the last week-end of June…

02 January 2020

Meet and exchange with others, hear personal accounts, attend and participate in workshops, receive and share information and enjoy the entertainment for all in order to learn about, reassure and amuse the younger participants! The weekend program consists of: conferences, […] LEARN MORE

The TOF book

02 January 2020

Most parents and families have never heard of oesophageal atresia (OA) or tracheo-oesophageal fistula (TOF).  Health professionals will try their best to explain the conditioon and the potential consequences for the child but conversations undertaken on the ward or in […] LEARN MORE

TOFS Video/easy-to-understand introduction to TEF/EA

01 January 2020

This short animation is a comforting and easily followed introduction to TOF/OA.  The terms are clearly explained in a down-to-earth way and there is an overview of what this might mean for your child. It’s creator, Vicki Martin, is an […] LEARN MORE

Comète : a symbolic Yule log to finance research on esophageal atresia.

01 January 2020

It’s been 10 years since the pastry chef Jérôme De Oliveira joined the French families support group AFAO of which he is the godfather. A recognized association of general interest accredited by the French Ministry of Solidarity and Health that […] LEARN MORE

Esophageal atresia patient journey workshop

01 January 2020

Further progress was made on the esophageal atresia ‘Patient Journey’ project at a workshop held in Berlin on November 15, 2019. This project has a multidisciplinary team with its membership drawn from surgery, nursing and patient representatives. The project has […] LEARN MORE

Children’s book Havva, the giraffe that can’t eat leaves.

10 July 2019

When our beautiful twins, son Mats and daughter Jinte, were born in December 2011, we were in for a great shock. Within a few hours after his birth, Mats was diagnosed with an esophageal atresia and VACTERL. He had to […] LEARN MORE

Useful TOF/OA Terms in various languages

07 August 2018

Terminology Glossary English Turkish Terminology Glossary English Spanish Terminology Glossary English Russian Terminology Glossary English Polish Terminology Glossary English Italian Terminology Glossary English German Terminology Glossary English French Terminology Glossary English Dutch