Meet and exchange with others, hear personal accounts, attend and participate in workshops, receive and share information and enjoy the entertainment for all in order to learn about, reassure and amuse the younger participants! The weekend program consists of: conferences, […] LEARN MORE
Most parents and families have never heard of oesophageal atresia (OA) or tracheo-oesophageal fistula (TOF). Health professionals will try their best to explain the conditioon and the potential consequences for the child but conversations undertaken on the ward or in […] LEARN MORE
This short animation is a comforting and easily followed introduction to TOF/OA. The terms are clearly explained in a down-to-earth way and there is an overview of what this might mean for your child. It’s creator, Vicki Martin, is an […] LEARN MORE
It’s been 10 years since the pastry chef Jérôme De Oliveira joined the French families support group AFAO of which he is the godfather. A recognized association of general interest accredited by the French Ministry of Solidarity and Health that […] LEARN MORE
Further progress was made on the esophageal atresia ‘Patient Journey’ project at a workshop held in Berlin on November 15, 2019. This project has a multidisciplinary team with its membership drawn from surgery, nursing and patient representatives. The project has […] LEARN MORE
When our beautiful twins, son Mats and daughter Jinte, were born in December 2011, we were in for a great shock. Within a few hours after his birth, Mats was diagnosed with an esophageal atresia and VACTERL. He had to […] LEARN MORE
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A record number of adults born with Tracheo-Oesophageal Fistula and/or Oesophageal Atresia (‘Adult TOFs’) attended the Adult TOF Seminar, held at Friends House, London on June 16th 2018. The Seminar commenced with five Adult TOFs describing their life with TOF/OA. […] LEARN MORE
The sixth international conference on EA will be held in Cincinnati, USA, in 2022.
