Home > News > The Work of EAT e.V. in ERNICA, the European Network for Rare Inherited and Congenital Anomalies

The Work of EAT e.V. in ERNICA, the European Network for Rare Inherited and Congenital Anomalies

29 August 2023

ERNICA is the European Reference Network for rare hereditary and congenital anomalies of the digestive and gastrointestinal tract. European Reference Networks (ERNs) are networks of healthcare professionals from specialised healthcare providers in the European Union (EU) and the European Economic Area (EEA). In this video, the patient representatives of EAT e.V. introduce you to participation and advocacy from a patient perspective in ERNICA. The role of an ERNICA patient representative is to represent the interests of the respective patient community, in this case the interests of people with the rare disease esophageal atresia, and to act as a link between this community and the ERN. For more information on ERNICA, please visit ern-ernica.eu.

Tweets by eatfederation

Esophageal Atresia Global Support Groups e.V. Sommerrainstrasse 61, 70374 Stuttgart, Germany