Dear fellow-sufferers of esophageal atresia,
I am 18 years old and was born myself with a long-gap esophageal atresia. In my last year of high school I have to write a diploma thesis. Since I am now more concerned about my disease, I have deliberately chosen this important issue.
My mother has of course inspired me on this, as she has been involved for years at the german support group KEKS and is also board member of EAT (The Federation of Esophageal Atresia and Tracheo-esophageal fistula support groups e.V.). She has showed me how vitally important it is to know about the gastro-esophageal reflux and its consequences.
When talking to other affected people I soon realised that there is a great need for specific and detailed information.
As a result of my work here is a detailed information booklet designed specifically for OA sufferers: Broschüren-gastroösophagealer Reflux-3
and here are the results of an online survey: survey results
Best regards
Shelley
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We are grateful for the financial support of EAT website
The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.
My baby is born with a TEF/EA on 16th February 2016 and a G tube has been put to help the baby feed. An operation is needed to connect the TEF/EA in a proper way. A Zambian citizen a this case is new in our country and it is a developing country and our country is poor to afford an operation. Am kindly asking for help and save my baby. I will be happy one day when I will be the one testifying.