EURORDIS (a non-governmental patient-driven alliance of patient organisations) organise the first Rare Disease Week in the lead up to Rare Disease Day 2021 (28 February).
The goal of this event is to empower, rare disease patient advocates, with knowledge and skills to effectively participate in advocacy activities at the European level and as a result influence the EU decisions that have a direct impact on the lives of people living with a rare disease.
For the first time, all of the events will be online due to the COVID-19
We comply with the HONcode standard for health trustworthy information
We are grateful for the financial support of EAT website
The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.