Rare Disease Week 2021 : save the date !

23 November 2020

EURORDIS (a non-governmental patient-driven alliance of patient organisations) organise the first Rare Disease Week in the lead up to Rare Disease Day 2021 (28 February).

The goal of this event is to empower, rare disease patient advocates, with knowledge and skills to effectively participate in advocacy activities at the European level and as a result influence the EU decisions that have a direct impact on the lives of people living with a rare disease.

Look at the program

For the first time, all of the events will be online due to the COVID-19

Leave a Reply

Your email address will not be published.