In November 2021, Louise received the Edelweiss Award in the category “Représentant de patient” from Radiorg (Radiorog is a non-profit alliance of rare disease patient organisations located in Belgium) .
Louise is 14 years old and was born with an esophageal atresia (long gap).
Frank Vandenbrouck, The Belgium Ministry of Health sent her a very nice video, with a very emotional speech.
Congratulations to Louise !
Voici les lauréats des Edelweiss Awards 2021 ! (radiorg.be)
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The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.