Each year since 1983, the EU has chosen a specific topic for the European Year in order to encourage debate and dialogue within and between European countries.
By acting together, we aim to make 2019 the European Year for Rare Diseases!
In 2019, we will celebrate the 20 year anniversary of the adoption of the EU Regulation on Orphan Medicinal Products and the 10 year anniversary of the Commission Communication and Council Recommendation on rare diseases.
2019 is an important year for the European rare disease movement. It marks the twenty-year anniversary of the adoption of the EU Regulation on Orphan Medicinal Products as well as the ten-year anniversary of the Council Recommendation on rare diseases.
What better way to celebrate these major milestones than with a European Year for Rare Diseases!
Join the campaign to make 2019 the European Year for Rare Diseases.
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The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.