EURORDIS has established European Patient Advocacy Groups (ePAGs) to work with the EU’s initiative to create European Reference Networks (ERNs).
EURORDIS recently asked for people from its member associations like EAT to come forwards possible delegates for these ePAGs.
Eat board put forward Anke’e name as a delegate for the Rare Gastro-intestinal Diseases group and we are very pleased to say that she has been elected as patient representative.
So, many congratulations to Anke !