Resources for health professionals

Feeding Problems and Their Underlying Mechanisms in the Esophageal Atresia-Tracheoesophageal Fistula Patient.

27 June 2017

Abstract Feeding difficulties such as dysphagia, coughing, choking, or vomiting during meals, slow eating, oral aversion, food refusal, and stressful mealtimes are common in children with repaired esophageal atresia (EA) and the reasons for this are often multifactorial. The aim […] LEARN MORE

A patient led, international study of long term outcomes of esophageal atresia: EAT 1.

27 June 2017

Abstract INTRODUCTION: Long term outcomes of esophageal atresia (OA) are poorly understood. The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula support groups (EAT), a collaboration of patient support groups aimed to define patient reported long term outcomes and quality of […] LEARN MORE

Dysmotility in esophageal Atresia: Pathophysiology, Characterization, and Treatment

18 June 2017

Esophageal dysmotility is almost universal after esophageal atresia (EA) repair and is mainly related to the developmental anomaly of the esophagus. Esophageal dysmotility is involved in the pathophysiology of numerous symptoms and comorbidities associated with EA such as gastroesophageal reflux […] LEARN MORE

ESPGHAN-NASPGHAN Guidelines for the Evaluation and Treatment of Gastrointestinal and Nutritional Complications in Children With Esophageal Atresia-Tracheoesophageal Fistula

10 April 2017

With improvements in surgical techniques and intensive care treatments, the focus of care of patients born with esophageal atresia has shifted from mortality to morbidity and quality-of-life issues. These patients face gastrointestinal (GI) problems not only in early childhood but […] LEARN MORE

Centers members of ERNICA

01 April 2017

ERNICA is a European Reference Network (ERN) which addresses congenital malformations and diseases that appear early in life and require multidisciplinary care and long-term follow-up, and examines the transition to adulthood ERNICA will focus initially on congenital gastro-intestinal (GI) diseases […] LEARN MORE

Learn more on European Reference Networks

01 April 2017

Presentation by the European Commission of  the European Reference Networks 2017_brochure_en

ERNICA: an European reference network which focuses mainly on EA

08 March 2017

ERNICA is a European Reference Network (ERN) which addresses congenital malformations and diseases that appear early in life and require multidisciplinary care and long-term follow-up, and examines the transition to adulthood. What will ERNICA do? ERNICA will focus initially on […] LEARN MORE

Prevalence of Barrett Esophagus in Adolescents and Young Adults With Esophageal Atresia

30 December 2016

Objective: To study the prevalence of Barrett esophagus (BE) (gastric and/or intestinal metaplasia) in adolescents treated for esophageal atresia (EA). Summary of Background Data:  EA patients are at high risk of BE. Methods: This multicenter prospective study included EA patients […] LEARN MORE