Resources for health professionals

Clinician knowledge of societal guidelines on management of gastrointestinal complications in esophageal atresia

29 December 2020

Jonathan E M O’Donnell, Michael Purcell, Hayat Mousa, Luigi Dall’Oglio, Rachel Rosen, Christophe Faure, Frédéric Gottrand, Usha Krishnan, Clinician knowledge of societal guidelines on management of gastrointestinal complications in esophageal atresia, Journal of Pediatric Gastroenterology and Nutrition, Publish Ahead of […] LEARN MORE

Traumatic stress, mental health and quality of life in adolescents with esophageal atresia

29 December 2020

A. Mikkelsen, B. Boye, T.H. Diseth et al., Traumatic stress, mental health and quality of life in adolescents with esophageal atresia, Journal of Pediatric Surgery, https://doi.org/10.1016/j.jpedsurg.2020.10.029 © 2020 The Authors. Published by Elsevier Inc. This is an open access article […] LEARN MORE

An ERNICA animation for parents and families

20 December 2020

CAN EAT – Care and Nutrition in Esophageal Atresia – The European Reference Networks for rare diseases – Inherited and Congenital Anomalies (ERNICA) produced an animation that aims to help patients and their families to understand esophageal atresia. The video […] LEARN MORE

An international survey on anastomotic stricture management after esophageal atresia repair: considerations and advisory statements

20 December 2020

Surgical endoscopy, 2020 Aug Chantal A. ten Kate1 · Renato Tambucci2 · John Vlot1 · Manon C. W. Spaander3 · Frederic Gottrand4 · Rene M. H. Wijnen1 · Luigi Dall’Oglio2Received: 8 April 2020 / Accepted: 24 July 2020 © The […] LEARN MORE

Care recommendations for the respiratory complications of esophageal atresia-tracheoesophageal fistula

26 October 2020

The International Network of Esophageal Atresia, Respiratory Complications Working Group has published a new article to “provide a framework for the diagnosis and management of the respiratory complications that are associated with the [Tracheoesophageal fistula (TEF) with esophageal atresia (EA)]. […] LEARN MORE

The history of surgery for esophageal atresia / J Pediatr Surg / 2020 Mar

06 May 2020

J Pediatr Surg. 2020 Mar 21. pii: S0022-3468(20)30199-8. doi: 10.1016/j.jpedsurg.2020.03.003. Nakayama DK1. Abstract Until the successful repair of esophageal atresia (EA) and distal tracheoesophageal fistula (TEF) in 1941 by Cameron Haight of Ann Arbor, MI, every infant operated upon for this anomaly […] LEARN MORE

Oesophageal atresia: The growth gap. / World J Gastroenterol / 2020 Mar

06 May 2020

World J Gastroenterol. 2020 Mar 28;26(12):1262-1272. doi: 10.3748/wjg.v26.i12.1262. Traini I1, Menzies J2, Hughes J3, Leach ST1, Krishnan U1. Abstract Poor growth is an under-recognised yet significant long-term sequelae of oesophageal atresia (OA) repair. Few studies have specifically explored the reasons for growth impairment in this complex […] LEARN MORE

ERNICA COVID-19 statement

06 April 2020

Extract from  Ernica  website Posted on 02 April 2020 The current situation with the COVID-19 pandemic is a significant global challenge. We understand that patients with rare inherited congenital digestive (and gastrointestinal) disorders and their families may have concerns about their […] LEARN MORE