Resources for health professionals

Risk Factors of Early Mortality and Morbidity in Esophageal Atresia with Distal Tracheoesophageal Fistula: A Population-Based Cohort Study

13 April 2021

Rony Sfeir, MD(1), Veronique Rousseau, MD(2), Arnaud Bonnard, PhD(3), Thomas Gelas, MD(4), Madeleine Aumar, MD(1), Nicoleta Panait, MD(5), Christian Piolat, PhD(6), Sabine Irtan, PhD(7), Virginie Fouquet, MD(8), Aurelie Lemandat, MD(9), Stephan De Napoli, MD(10), Edouard Habonimana, MD(11), Thierry Lamireau, PhD(12), […] LEARN MORE

Long-term survival of children born with congenital anomalies: A systematic review and meta-analysis of population-based studies

13 April 2021

Svetlana V. Glinianaia (1), Joan K. Morris (2), Kate E. Best (1), Michele Santoro (3), Alessio Coi (3), Annarita Armaroli (4), Judith Rankin(1) (1) Population Health Sciences Institute, Faculty of Medical Sciences, Newcastle University, Newcastle upon Tyne, United Kingdom (2) […] LEARN MORE

Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional study

30 March 2021

Stefanie Witt 1, Michaela Dellenmark-Blom 2, Susanne Kuckuck 3, Jens Dingemann 4, Kate Abrahamsson 2 5, Carmen Dingemann 4, John Eric Chaplin 5, Benno Ure 4, Monika Bullinger 3, Vladimir Gatzinsky 2, Linus Jönsson 2, Julia Hannah Quitmann 3 1Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Martinistraße 52 – W26, 20246, Hamburg, Germany. s.witt@uke.de. 2Department of Pediatric Surgery, Queen Silvia Children’s Hospital, Sahlgrenska […] LEARN MORE

Long-term consequences of esophageal atresia; esophageal and lung abnormalities in adulthood

28 March 2021

C A Ten Kate 1, J Vlot 2, L S Kamphuis 3, H IJsselstijn 2, M C W Spaander 4 5 1Erasmus MC-Sophia, afd. Kinderchirurgie, Rotterdam(tevens: Erasmus MC, afd. Maag-, Darm- en Leverziekten, Rotterdam). 2Erasmus MC-Sophia, afd. Kinderchirurgie, Rotterdam. 3Erasmus MC, afd. Longgeneeskunde, Rotterdam. 4Erasmus MC, afd. Maag-, Darm- en […] LEARN MORE

Development of patient specific, realistic, and reusable video assisted thoracoscopic surgery simulator using 3D printing and pediatric computed tomography images

26 March 2021

Dayeong Hong 1, HaeKang Kim 2, Taehun Kim 2, Yong-Hee Kim 3, Namkug Kim 4 5 1Department of Biomedical Engineering, Asan Medical Institute of Convergence Science and Technology, Asan Medical Center, University of Ulsan College of Medicine, Seoul, Republic of Korea. 2Department of Radiology and Convergence Medicine, Asan Medical […] LEARN MORE

Clinician knowledge of societal guidelines on management of gastrointestinal complications in esophageal atresia

29 December 2020

Jonathan E M O’Donnell, Michael Purcell, Hayat Mousa, Luigi Dall’Oglio, Rachel Rosen, Christophe Faure, Frédéric Gottrand, Usha Krishnan, Clinician knowledge of societal guidelines on management of gastrointestinal complications in esophageal atresia, Journal of Pediatric Gastroenterology and Nutrition, Publish Ahead of […] LEARN MORE

Traumatic stress, mental health and quality of life in adolescents with esophageal atresia

29 December 2020

A. Mikkelsen, B. Boye, T.H. Diseth et al., Traumatic stress, mental health and quality of life in adolescents with esophageal atresia, Journal of Pediatric Surgery, https://doi.org/10.1016/j.jpedsurg.2020.10.029 © 2020 The Authors. Published by Elsevier Inc. This is an open access article […] LEARN MORE

An ERNICA animation for parents and families

20 December 2020

CAN EAT – Care and Nutrition in Esophageal Atresia – The European Reference Networks for rare diseases – Inherited and Congenital Anomalies (ERNICA) produced an animation that aims to help patients and their families to understand esophageal atresia. The video […] LEARN MORE