When our beautiful twins, son Mats and daughter Jinte, were born in December 2011, we were in for a great shock. Within a few hours after his birth, Mats was diagnosed with an esophageal atresia and VACTERL. He had to […] LEARN MORE
https://ern-ernica.eu/ The European Reference Network for Rare Inherited Congenital Anomalies (ERNICA) was officially established in March 2017 and is one of 24 European Reference Networks co-funded by the European Union (Health Programme). ERNICA involves teams from 20 European hospitals from 10 […] LEARN MORE
A record number of adults born with Tracheo-Oesophageal Fistula and/or Oesophageal Atresia (‘Adult TOFs’) attended the Adult TOF Seminar, held at Friends House, London on June 16th 2018. The Seminar commenced with five Adult TOFs describing their life with TOF/OA. […] LEARN MORE
For the EA travelers, here are 70 keywords translated in nine different languages! TerminologyGlossary_
Great ( and sunny!) day for our ABeFAO Family Day in Pairi Daiza (Belgium) on 22/4/2018! A good opportunity to meet our new members, to share questions and experiences.. and to enjoy our children’s large smiles! Thanks to all our […] LEARN MORE
The Esophageal and Airway Treatment (EAT) Center at Boston Children’s Hospital cares for infants, children and young adults with esophageal and airway problems
Ebook Frontiers Update on EA-TEF In 2010, the First International Workshop on Esophageal Atresia was held in Lille, France. The success of that event established a new model of conference based not on medical subspecialty but specifically on disease, bringing […] LEARN MORE
ERNICA is a European Reference Network (ERN) which addresses congenital malformations and diseases that appear early in life and require multidisciplinary care and long-term follow-up, and examines the transition to adulthood ERNICA will focus initially on congenital gastro-intestinal (GI) diseases […] LEARN MORE
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The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.