News

ERNICA Consensus Conference on the Management of Patients with Esophageal Atresia and Tracheoesophageal Fistula: Diagnostics, Preoperative, Operative, and Postoperative Management.

01 January 2020

Eur J Pediatr Surg. 2019 Nov 27 Abstract INTRODUCTION: Many aspects of the management of esophageal atresia (EA) and tracheoesophageal fistula (TEF) are controversial and the evidence for decision making is limited. Members of the European Reference Network for Rare […] LEARN MORE

Comète : a symbolic Yule log to finance research on esophageal atresia.

01 January 2020

It’s been 10 years since the pastry chef Jérôme De Oliveira joined the French families support group AFAO of which he is the godfather. A recognized association of general interest accredited by the French Ministry of Solidarity and Health that […] LEARN MORE

Esophageal atresia patient journey workshop

01 January 2020

Further progress was made on the esophageal atresia ‘Patient Journey’ project at a workshop held in Berlin on November 15, 2019. This project has a multidisciplinary team with its membership drawn from surgery, nursing and patient representatives. The project has […] LEARN MORE

2nd ERNICA consensus conference: “Long-gap Esophageal Atresia: Perioperative, Surgical and Long-term Management”

01 January 2020

The 2nd ERNICA consensus conference on the Perioperative, Surgical and Long-term Management of Patients with Long-gap Esophageal Atresia took place in Berlin on the 13th and 14th November 2019. After an extensive literature search and preparation, relevant aspects regarding the […] LEARN MORE

Children’s book Havva, the giraffe that can’t eat leaves.

10 July 2019

When our beautiful twins, son Mats and daughter Jinte, were born in December 2011, we were in for a great shock. Within a few hours after his birth, Mats was diagnosed with an esophageal atresia and VACTERL. He had to […] LEARN MORE

ERNICA has launched its website !

06 August 2018

https://ern-ernica.eu/ The European Reference Network for Rare Inherited Congenital Anomalies (ERNICA) was officially established in March 2017 and is one of 24 European Reference Networks co-funded by the European Union (Health Programme). ERNICA involves teams from 20 European hospitals from 10 […] LEARN MORE

Record number of Adult TOFS attend 2018 Adult TOF Seminar

06 August 2018

A record number of adults born with Tracheo-Oesophageal Fistula and/or Oesophageal Atresia (‘Adult TOFs’) attended the Adult TOF Seminar, held at Friends House, London on June 16th 2018. The Seminar commenced with five Adult TOFs describing their life with TOF/OA. […] LEARN MORE

Glossary on Esophageal Atresia in 9 languages

06 August 2018

For the EA travelers, here are 70 keywords translated in nine different languages! TerminologyGlossary_