To share its videos with its members, the EAT website team has created a brand new YouTube channel, just for the EAT federation. You can discover below the last video published : > Subscribe to the EAT YouTube channel
I am a TOF kid This book has been written as a narrative through the TOF childs eyes as they start school for the first time. It also gives facts about the TOF cough, being sick and getting food stuck. […] LEARN MORE
CAN EAT – Care and Nutrition in Esophageal Atresia – The European Reference Networks for rare diseases – Inherited and Congenital Anomalies (ERNICA) produced an animation that aims to help patients and their families to understand esophageal atresia. The video […] LEARN MORE
A lot of patients with esophageal atresia have a very noisy cough. The German patient organization for children and grownups with esophageal atresia (KEKS) now provides their member with little informative leaflets in credit card format. They let other people […] LEARN MORE
EURORDIS (a non-governmental patient-driven alliance of patient organisations) organise the first Rare Disease Week in the lead up to Rare Disease Day 2021 (28 February). The goal of this event is to empower, rare disease patient advocates, with knowledge and […] LEARN MORE
On the 9th of November, OATSA organize a kids art auction on live, for their first awareness month ! See more about the event November 2020 is the first awareness month for OATSA, the non-profit company and support group […] LEARN MORE
The International Network of Esophageal Atresia, Respiratory Complications Working Group has published a new article to “provide a framework for the diagnosis and management of the respiratory complications that are associated with the [Tracheoesophageal fistula (TEF) with esophageal atresia (EA)]. […] LEARN MORE
RDI and EURORDIS have partnered to develop the Universal Health Coverage for Rare Diseases (UHC4RareDiseases) campaign. The campaign aims to enable patient organisations and the public to call for Universal Health Coverage (UHC) policies and programmes that include rare diseases. The #UHC4RareDiseases toolkit offers […] LEARN MORE
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The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.