A medical glossary for esophageal atresia

28 September 2020

The French Association of Esophageal Atresia (AFAO) is proud to publish its 1st medical glossary of esophageal atresia in French, produced by Emma Giraudier under the direction of Ms. Pascaline Dury, professor of universities . The result is this small […] LEARN MORE

Fanny-Selena Prize 2020

26 August 2020

Due to the rare nature of esophageal pathologies, research project that aim to improve awareness and the treatment of these pathologies are few and far between. Since 2007, the French Association for esophageal atresia (AFAO – Association Francaise de l’Atresie […] LEARN MORE

Oral feeding difficulties : a notebook to support the families

06 June 2020

To support parents in their child’s oral feeding difficulties,  The French Association of Esophageal Atresia (AFAO) and Alice Avart – therapist specializing in oral feeding difficulties, developed a notebook in 2020, available here: A year of sensory challenges around food […] LEARN MORE

How to Put on and Remove a Face Mask? / COVID19

06 May 2020

Video from How to put on a face mask? Clean your hands with soap and water or hand sanitizer before touching the mask. Remove a mask from the box and make sure there are no obvious tears or holes […] LEARN MORE

EAT General Assembly April 2020

06 May 2020

20 representants of 11 different countries (from 4 continents) were present at the last general assembly in April 2020 (zoom meeting). EAT, an international federation for families concerned with esophageal atresia, is always on the board #exchange #collaboration #information

A patient journey for an esophageal atresia patient: the proposal of ERNICA

02 May 2020

Article from the ERN-wide European Commission newsletter Using a unique methodology to map an esophageal atresia patient’s journey, ERNICA is highlighting key issues and areas of good practice. Esophageal atresia (EA) is a rare congenital condition with an estimated prevalence […] LEARN MORE

Esophageal Atresia COVID-19 – EAT – Patient reported outcomes study

16 April 2020

The COVID-19 Coronavirus is already the subject of scientific and medical research and we can expect more studies to be commissioned. Many of these studies will consider the epidemiological aspects of the virus and there will also be clinical studies […] LEARN MORE

ERNICA COVID-19 statement

06 April 2020

Extract from  Ernica  website Posted on 02 April 2020 The current situation with the COVID-19 pandemic is a significant global challenge. We understand that patients with rare inherited congenital digestive (and gastrointestinal) disorders and their families may have concerns about their […] LEARN MORE