Using a unique methodology to map an esophageal atresia patient’s journey, ERNICA is highlighting key issues and areas of good practice. Esophageal atresia (EA) is a rare congenital condition with an estimated prevalence varying between 1 and 2 in 5,000 […] LEARN MORE
This webinar was presented on Wednesday 26th October 2022 by dr. Eberhard Schmiedeke, paediatric surgeon in Klinikum Bremen-Mitte Germarny and Ms. Dalia Aminoff, head of AIMAR, the Italian patient organisation for ARM (Ano-Rectal Malformations). It is aimed at healthcare professionals, […] LEARN MORE
Graham Slater has been awarded the Esophageal* Atresia World Award from EAT – the federation of member support groups for oesophageal atresia (OA). The award was presented during the recent Quad conference (Sixth international conference on Esophageal Atresia) in Cincinnati. […] LEARN MORE
AndreaConfortia ChiaraPellegrinoa LauraValfréa ChiaraIacussoa PaoloMariSalvatoreSchingob IrmaCapolupoa StefaniaSgro’c LarsRasmussend PietroBagolanae aMedical and Surgical Dept of the Fetus, Newborn and Infant, Bambino Gesù Children’s Hospital IRCCS, , 4, Piazza S. Onofrio, 00165, Rome, Italy bDepartment of […] LEARN MORE
ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies. The network was officially launched in March 2017. ERNICA is a network of expert multi-disciplinary healthcare professionals from specialised healthcare providers across Europe (‘ERNICA members’). ERNICA has 40 member hospitals across 12 EU/EEA […] LEARN MORE
INoEA is the international organization for all professionals working in the field of esophageal atresia and taking care of patients (neonates, infants, children, adolescents and adults) born with esophageal atresia. This network was set up by health professionals and researchers working on […] LEARN MORE
In November 2021, Louise received the Edelweiss Award in the category “Représentant de patient” from Radiorg (Radiorog is a non-profit alliance of rare disease patient organisations located in Belgium) . Louise is 14 years old and was born with an […] LEARN MORE
We are delighted to announce that Graham Slater, the former president of our organization, received the EURORDIS Black Pearl Volunteer Award. The Black Pearl Awards recognize the outstanding achievements and exceptional work of people making a difference for the rare disease […] LEARN MORE
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The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.