EAT has a brand new YouTube channel !

19 January 2021

To share its videos with its members, the EAT website team has created a brand new YouTube channel, just for the EAT federation. You can discover below the last video published : > Subscribe to the EAT YouTube channel

2 books for EA children : I am a TOF kid / Abigail’s Smile : A story about a child with EA

29 December 2020

I am a TOF kid This book has been written as a narrative through the TOF childs eyes as they start school for the first time. It also gives facts about the TOF cough, being sick and getting food stuck. […] LEARN MORE

An ERNICA animation for parents and families

20 December 2020

CAN EAT – Care and Nutrition in Esophageal Atresia – The European Reference Networks for rare diseases – Inherited and Congenital Anomalies (ERNICA) produced an animation that aims to help patients and their families to understand esophageal atresia. The video […] LEARN MORE

Little Info cards make life easier for German patients with esophageal atresia

25 November 2020

A lot of patients with esophageal atresia have a very noisy cough. The German patient organization for children and grownups with esophageal atresia (KEKS) now provides their member with little informative leaflets in credit card format. They let other people […] LEARN MORE

Rare Disease Week 2021 : save the date !

23 November 2020

EURORDIS (a non-governmental patient-driven alliance of patient organisations) organise the first Rare Disease Week in the lead up to Rare Disease Day 2021 (28 February). The goal of this event is to empower, rare disease patient advocates, with knowledge and […] LEARN MORE

09/11 Kids art auction for OATSA – South Africa

06 November 2020

On the 9th of November, OATSA organize a kids art auction on live, for their first awareness month ! See more about the event   November 2020 is the first awareness month for OATSA, the non-profit company and support group […] LEARN MORE

Care recommendations for the respiratory complications of esophageal atresia-tracheoesophageal fistula

26 October 2020

The International Network of Esophageal Atresia, Respiratory Complications Working Group has published a new article to “provide a framework for the diagnosis and management of the respiratory complications that are associated with the [Tracheoesophageal fistula (TEF) with esophageal atresia (EA)]. […] LEARN MORE

The Universal Health Coverage for Rare Diseases

10 October 2020

RDI and EURORDIS have partnered to develop the Universal Health Coverage for Rare Diseases (UHC4RareDiseases) campaign. The campaign aims to enable patient organisations and the public to call for Universal Health Coverage (UHC) policies and programmes that include rare diseases. The #UHC4RareDiseases toolkit offers […] LEARN MORE