CLEAR Consortium

03 June 2021

The CLEAR (Congenital Esophageal and Airway Defect Research) Consortium is a collaborative research program funded by the Eunice Kennedy Shriver National Institute of Child Health and Human Development focused on understanding birth defects (P01 HD093363). The goal of the CLEAR […] LEARN MORE

TOFS Video/easy-to-understand introduction to TEF/EA

01 June 2021

This short animation is a comforting and easily followed introduction to TOF/OA.  The terms are clearly explained in a down-to-earth way and there is an overview of what this might mean for your child. It’s creator, Vicki Martin, is an […] LEARN MORE

EAT federation has a new logo !

16 April 2021

EAT federation is proud to show you our new logo ! What has changed ? Colors and design, too old. The logo is not updated yet on our website but it’s coming soon !  

TOFS awareness week

17 March 2021

TOFS in the UK is having an ‘Awareness Week’ for esophageal atresia from Monday March 15 until March 21. This is deliberately coincidental with International Swallowing Awareness Day on Wednesday 17 March,  and the NHS (National Health Service) England  Nutrition and […] LEARN MORE

EAT has a brand new YouTube channel !

19 January 2021

To share its videos with its members, the EAT website team has created a brand new YouTube channel, just for the EAT federation. You can discover below the last video published : > Subscribe to the EAT YouTube channel

2 books for EA children : I am a TOF kid / Abigail’s Smile : A story about a child with EA

29 December 2020

I am a TOF kid This book has been written as a narrative through the TOF childs eyes as they start school for the first time. It also gives facts about the TOF cough, being sick and getting food stuck. […] LEARN MORE

An ERNICA animation for parents and families

20 December 2020

CAN EAT – Care and Nutrition in Esophageal Atresia – The European Reference Networks for rare diseases – Inherited and Congenital Anomalies (ERNICA) produced an animation that aims to help patients and their families to understand esophageal atresia. The video […] LEARN MORE

Little Info cards make life easier for German patients with esophageal atresia

25 November 2020

A lot of patients with esophageal atresia have a very noisy cough. The German patient organization for children and grownups with esophageal atresia (KEKS) now provides their member with little informative leaflets in credit card format. They let other people […] LEARN MORE