News

2nd ERNICA consensus conference: “Long-gap Esophageal Atresia: Perioperative, Surgical and Long-term Management”

01 January 2020

The 2nd ERNICA consensus conference on the Perioperative, Surgical and Long-term Management of Patients with Long-gap Esophageal Atresia took place in Berlin on the 13th and 14th November 2019. After an extensive literature search and preparation, relevant aspects regarding the […] LEARN MORE

Children’s book Havva, the giraffe that can’t eat leaves.

10 July 2019

When our beautiful twins, son Mats and daughter Jinte, were born in December 2011, we were in for a great shock. Within a few hours after his birth, Mats was diagnosed with an esophageal atresia and VACTERL. He had to […] LEARN MORE

Useful TOF/OA Terms in various languages

07 August 2018

Terminology Glossary English Turkish Terminology Glossary English Spanish Terminology Glossary English Russian Terminology Glossary English Polish Terminology Glossary English Italian Terminology Glossary English German Terminology Glossary English French Terminology Glossary English Dutch

ERNICA has launched its website !

06 August 2018

https://ern-ernica.eu/ The European Reference Network for Rare Inherited Congenital Anomalies (ERNICA) was officially established in March 2017 and is one of 24 European Reference Networks co-funded by the European Union (Health Programme). ERNICA involves teams from 20 European hospitals from 10 […] LEARN MORE

Record number of Adult TOFS attend 2018 Adult TOF Seminar

06 August 2018

A record number of adults born with Tracheo-Oesophageal Fistula and/or Oesophageal Atresia (‘Adult TOFs’) attended the Adult TOF Seminar, held at Friends House, London on June 16th 2018. The Seminar commenced with five Adult TOFs describing their life with TOF/OA. […] LEARN MORE

Glossary on Esophageal Atresia in 9 languages

06 August 2018

For the EA travelers, here are 70 keywords translated in nine different languages! TerminologyGlossary_

ABeFAO Family Day in Pairi Daiza

25 April 2018

Great ( and sunny!) day for our ABeFAO Family Day in Pairi Daiza (Belgium)  on 22/4/2018! A good opportunity to meet our new members, to share questions and experiences.. and to enjoy our children’s large smiles! Thanks to all our […] LEARN MORE

Esophageal and Airway Treatment Center (EAT) | Boston Children’s Hospital

31 December 2017

The Esophageal and Airway Treatment (EAT) Center at Boston Children’s Hospital cares for infants, children and young adults with esophageal and airway problems