News

Report on gastro-esophageal reflux from Shelley

26 August 2015

Dear fellow-sufferers of esophageal atresia, I am 18 years old and was born myself with a long-gap esophageal atresia. In my last year of high school I have to write a diploma thesis. Since I am now more concerned about […] LEARN MORE

TOF/OA Leaflets now available in Arabic!

26 August 2015

A  TOFS member Mayyada Wazaify  translated some of the TOFS leaflets into Arabic! Mayyada is Professor of Pharmacy Practice at the University of Jordan and also Mum to five year old Mohammad, born with TOF/OA. Mohammad has needed six oesophageal […] LEARN MORE

Getting ready for an EA European Reference Networks?

26 August 2015

Yann Le Cam, Eurordis Chief Executive Officer and Matt Johnson, Healthcare and Research Director presented  in May during an Eurordis webinar the European Reference Networks project. Video of the webinar, including presentation and 1 hour Q&A (please allow 1 minute to […] LEARN MORE