Long segment colonic interposition

28 September 2014

Here is a great video from the Esophageal Center at Cincinatti children’s explaining the long segment colonic interposition. This technique is used to o correct long-gap Esophageal Atresia or repair severe damage to the length of the esophagus, a portion of […] LEARN MORE

My life as Europe’s senior TOF – by Bridget Barson !

08 July 2014

Many TOFS members will know that TOF/OA was first successfully treated in 1941 in the USA. In 1947 came the first successful TOF/OA surgery in Europe, at Hammersmith Hospital, London. Bridget Barson was that baby! As Europe’s senior TOF, she is an […] LEARN MORE

Call for volunteers to participate in a study on stenosis treatment

06 May 2014

A group of European experts are carrying on a study in order to evaluate the efficiency of the Biodegradable stents for benign refractory oesophageal stenosis.  This evaluation is carried on by EUnetHTA partners. EUnetHTA , the European Network of Health […] LEARN MORE

Mind the Gap: Clinical and Molecular-Genetics Studies in Esophageal Atresia.

01 November 2013

Clinical and Molecular-Genetics Studies in Esophageal Atresia. The research presented in this dissertation was performed at the Departments of Pediatric Surgery and Clinical Genetics, Erasmus University Medical Center, Rotterdam, The Netherlands. Elisabeth Maaike de Jong, 2010         […] LEARN MORE

A book for TOF children

06 October 2013

When our daughter Lois was born with trachea oesophageal fistula 10 years ago, my husband and I were in complete shock. Like most mothers, I had visualised us as a happy, relaxed family in the days following her birth. My […] LEARN MORE

The KEKS house

29 May 2013

Since December 2012, the KEKS House in Stuttgart Sommerrain has been completed and “put into operation”. KEKS families can meet here when they simply need time away from their daily chores with their ill child. Together we attempt to find […] LEARN MORE

3D animation about EA

25 May 2013

We have one dad who is a 3D animation designer and he teaches at a Lab Creation, a training program for 3D designers in Mesagne, a small town in Puglia. I have asked him if he would be willing to […] LEARN MORE

The role of multidisciplinary clinics in the management of children with EA

11 March 2013

The survival of infants born with esophageal atresia (EA) has improved significantly yet many children experience significant short and long-term morbidity associated with reduced quality of life and lower parental health perception scores. The burden of care, related to frequent […] LEARN MORE