Support groups actions

Little Info cards make life easier for German patients with esophageal atresia

25 November 2020

A lot of patients with esophageal atresia have a very noisy cough. The German patient organization for children and grownups with esophageal atresia (KEKS) now provides their member with little informative leaflets in credit card format. They let other people […] LEARN MORE

09/11 Kids art auction for OATSA – South Africa

06 November 2020

On the 9th of November, OATSA organize a kids art auction on live, for their first awareness month ! See more about the event   November 2020 is the first awareness month for OATSA, the non-profit company and support group […] LEARN MORE

A medical glossary for esophageal atresia

28 September 2020

The French Association of Esophageal Atresia (AFAO) is proud to publish its 1st medical glossary of esophageal atresia in French, produced by Emma Giraudier under the direction of Ms. Pascaline Dury, professor of universities . The result is this small […] LEARN MORE

Fanny-Selena Prize 2020

26 August 2020

Due to the rare nature of esophageal pathologies, research project that aim to improve awareness and the treatment of these pathologies are few and far between. Since 2007, the French Association for esophageal atresia (AFAO – Association Francaise de l’Atresie […] LEARN MORE

Oral feeding difficulties : a notebook to support the families

06 June 2020

To support parents in their child’s oral feeding difficulties,  The French Association of Esophageal Atresia (AFAO) and Alice Avart – therapist specializing in oral feeding difficulties, developed a notebook in 2020, available here: A year of sensory challenges around food […] LEARN MORE

AFAO Family days every year, on the last week-end of June…

02 January 2020

Meet and exchange with others, hear personal accounts, attend and participate in workshops, receive and share information and enjoy the entertainment for all in order to learn about, reassure and amuse the younger participants! The weekend program consists of: conferences, […] LEARN MORE

Comète : a symbolic Yule log to finance research on esophageal atresia.

01 January 2020

It’s been 10 years since the pastry chef Jérôme De Oliveira joined the French families support group AFAO of which he is the godfather. A recognized association of general interest accredited by the French Ministry of Solidarity and Health that […] LEARN MORE

Esophageal atresia patient journey workshop

01 January 2020

Further progress was made on the esophageal atresia ‘Patient Journey’ project at a workshop held in Berlin on November 15, 2019. This project has a multidisciplinary team with its membership drawn from surgery, nursing and patient representatives. The project has […] LEARN MORE