Support groups actions

Fanny-Selena Prize 2020

26 August 2020

Due to the rare nature of esophageal pathologies, research project that aim to improve awareness and the treatment of these pathologies are few and far between. Since 2007, the French Association for esophageal atresia (AFAO – Association Francaise de l’Atresie […] LEARN MORE

Oral feeding difficulties : a notebook to support the families

06 June 2020

To support parents in their child’s oral feeding difficulties,  The French Association of Esophageal Atresia (AFAO) and Alice Avart – therapist specializing in oral feeding difficulties, developed a notebook in 2020, available here: A year of sensory challenges around food […] LEARN MORE

AFAO Family days every year, on the last week-end of June…

02 January 2020

Meet and exchange with others, hear personal accounts, attend and participate in workshops, receive and share information and enjoy the entertainment for all in order to learn about, reassure and amuse the younger participants! The weekend program consists of: conferences, […] LEARN MORE

Comète : a symbolic Yule log to finance research on esophageal atresia.

01 January 2020

It’s been 10 years since the pastry chef Jérôme De Oliveira joined the French families support group AFAO of which he is the godfather. A recognized association of general interest accredited by the French Ministry of Solidarity and Health that […] LEARN MORE

Esophageal atresia patient journey workshop

01 January 2020

Further progress was made on the esophageal atresia ‘Patient Journey’ project at a workshop held in Berlin on November 15, 2019. This project has a multidisciplinary team with its membership drawn from surgery, nursing and patient representatives. The project has […] LEARN MORE

Children’s book Havva, the giraffe that can’t eat leaves.

10 July 2019

When our beautiful twins, son Mats and daughter Jinte, were born in December 2011, we were in for a great shock. Within a few hours after his birth, Mats was diagnosed with an esophageal atresia and VACTERL. He had to […] LEARN MORE

Record number of Adult TOFS attend 2018 Adult TOF Seminar

06 August 2018

A record number of adults born with Tracheo-Oesophageal Fistula and/or Oesophageal Atresia (‘Adult TOFs’) attended the Adult TOF Seminar, held at Friends House, London on June 16th 2018. The Seminar commenced with five Adult TOFs describing their life with TOF/OA. […] LEARN MORE

Glossary on Esophageal Atresia in 9 languages

06 August 2018

For the EA travelers, here are 70 keywords translated in nine different languages! TerminologyGlossary_