EAT Events

Esophageal atresia patient journey workshop

01 January 2020

Further progress was made on the esophageal atresia ‘Patient Journey’ project at a workshop held in Berlin on November 15, 2019. This project has a multidisciplinary team with its membership drawn from surgery, nursing and patient representatives. The project has […] LEARN MORE

2nd ERNICA consensus conference: “Long-gap Esophageal Atresia: Perioperative, Surgical and Long-term Management”

01 January 2020

The 2nd ERNICA consensus conference on the Perioperative, Surgical and Long-term Management of Patients with Long-gap Esophageal Atresia took place in Berlin on the 13th and 14th November 2019. After an extensive literature search and preparation, relevant aspects regarding the […] LEARN MORE

Children’s book Havva, the giraffe that can’t eat leaves.

10 July 2019

When our beautiful twins, son Mats and daughter Jinte, were born in December 2011, we were in for a great shock. Within a few hours after his birth, Mats was diagnosed with an esophageal atresia and VACTERL. He had to […] LEARN MORE

Record number of Adult TOFS attend 2018 Adult TOF Seminar

06 August 2018

A record number of adults born with Tracheo-Oesophageal Fistula and/or Oesophageal Atresia (‘Adult TOFs’) attended the Adult TOF Seminar, held at Friends House, London on June 16th 2018. The Seminar commenced with five Adult TOFs describing their life with TOF/OA. […] LEARN MORE

Glossary on Esophageal Atresia in 9 languages

06 August 2018

For the EA travelers, here are 70 keywords translated in nine different languages! TerminologyGlossary_

ABeFAO Family Day in Pairi Daiza

25 April 2018

Great ( and sunny!) day for our ABeFAO Family Day in Pairi Daiza (Belgium)  on 22/4/2018! A good opportunity to meet our new members, to share questions and experiences.. and to enjoy our children’s large smiles! Thanks to all our […] LEARN MORE

Update on Oesophageal Atresia-Tracheoesophageal Fistula

14 November 2017

Ebook Frontiers Update on EA-TEF In 2010, the First International Workshop on Esophageal Atresia was held in Lille, France. The success of that event established a new model of conference based not on medical subspecialty but specifically on disease, bringing […] LEARN MORE

A patient led, international study of long term outcomes of esophageal atresia: EAT 1.

27 June 2017

Abstract INTRODUCTION: Long term outcomes of esophageal atresia (OA) are poorly understood. The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula support groups (EAT), a collaboration of patient support groups aimed to define patient reported long term outcomes and quality of […] LEARN MORE

The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.