Five years of ERNICA

27 November 2022

As ERNICA, the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies passes its five-year anniversary we take a look back at how bringing together expert healthcare professionals from across Europe has benefitted the EA  community. When […] LEARN MORE

A patient journey for an esophageal atresia patient

26 November 2022

Using a unique methodology to map an esophageal atresia patient’s journey, ERNICA is highlighting key issues and areas of good practice. Esophageal atresia (EA) is a rare congenital condition with an estimated prevalence varying between 1 and 2 in 5,000 […] LEARN MORE

The transEAsome project

01 November 2022

Led by the CRACMO*, the TransEAsome project provides the long term follow-up of children operated from esophageal atresia until they are 13-14 years old. In addition to monitoring, a biobank will be incorporated with esophageal biopsies performed during endoscopies and […] LEARN MORE

Advantages of centralization of care

01 November 2022

This webinar was presented on Wednesday 26th October 2022 by dr. Eberhard Schmiedeke, paediatric surgeon in Klinikum Bremen-Mitte Germarny and Ms. Dalia Aminoff, head of AIMAR, the Italian patient organisation for ARM (Ano-Rectal Malformations). It is aimed at healthcare professionals, […] LEARN MORE

7th International Conference on Esophageal Atresia in Istambul, Turkey

01 November 2022

Dear Colleagues, It is our great pleasure to invite you to the 7th INoEA Conference which will be held in Istanbul Turkiye in 2025. The conference will be hosted by Turkish Association of Pediatric Surgeons (TAPS) under the auspices of […] LEARN MORE

Analysis of eosinophilic esophagitis in children with repaired congenital esophageal atresia

25 October 2022

Usha Krishnan 1, Chan Lijuan 2, Gifford J Andrew 3, Marc E Rothenberg 4, Ting Wen 5 Allergy Clin Immunol. 2019 Apr;143(4):1455-1464 Abstract Background: A high prevalence of eosinophilic esophagitis (EoE) has been preliminarily reported in patients after repair of esophageal atresia (EA), but the basis of this association is […] LEARN MORE

Long term digestive outcome of œsophageal atresia

25 October 2022

Aumar Madeleine 1, Nicolas Audrey 2, Sfeir Rony 3, Seguy David 4, Gottrand Frédéric 5 Best Practice & Research Clinical Gastroenterology Volumes 56–57, February–March 2022, 101771   Abstract Œsophageal atresia is a rare neonatal malformation consisting in an interruption of the continuity of the œsophagus, with or without a tracheo-œsophageal […] LEARN MORE

Graham Slater awarded the Esophageal Atresia World Award in Cincinnati

25 October 2022

  Graham Slater has been awarded the Esophageal* Atresia World Award from EAT – the federation of member support groups for oesophageal atresia (OA). The award was presented during the recent Quad conference (Sixth international conference on Esophageal Atresia) in Cincinnati. […] LEARN MORE