A lot of patients with esophageal atresia have a very noisy cough. The German patient organization for children and grownups with esophageal atresia (KEKS) now provides their member with little informative leaflets in credit card format. They let other people […] LEARN MORE
EURORDIS (a non-governmental patient-driven alliance of patient organisations) organise the first Rare Disease Week in the lead up to Rare Disease Day 2021 (28 February). The goal of this event is to empower, rare disease patient advocates, with knowledge and […] LEARN MORE
On the 9th of November, OATSA organize a kids art auction on live, for their first awareness month ! See more about the event November 2020 is the first awareness month for OATSA, the non-profit company and support group […] LEARN MORE
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The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.
The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.