This book has been written as a narrative through the TOF childs eyes as they start school for the first time. It also gives facts about the TOF cough, being sick and getting food stuck. Because its written as a […] LEARN MORE
I am a TOF kid This book has been written as a narrative through the TOF childs eyes as they start school for the first time. It also gives facts about the TOF cough, being sick and getting food stuck. […] LEARN MORE
Jonathan E M O’Donnell, Michael Purcell, Hayat Mousa, Luigi Dall’Oglio, Rachel Rosen, Christophe Faure, Frédéric Gottrand, Usha Krishnan, Clinician knowledge of societal guidelines on management of gastrointestinal complications in esophageal atresia, Journal of Pediatric Gastroenterology and Nutrition, Publish Ahead of […] LEARN MORE
A. Mikkelsen, B. Boye, T.H. Diseth et al., Traumatic stress, mental health and quality of life in adolescents with esophageal atresia, Journal of Pediatric Surgery, https://doi.org/10.1016/j.jpedsurg.2020.10.029 © 2020 The Authors. Published by Elsevier Inc. This is an open access article […] LEARN MORE
CAN EAT – Care and Nutrition in Esophageal Atresia – The European Reference Networks for rare diseases – Inherited and Congenital Anomalies (ERNICA) produced an animation that aims to help patients and their families to understand esophageal atresia. The video […] LEARN MORE
Surgical endoscopy, 2020 Aug Chantal A. ten Kate1 · Renato Tambucci2 · John Vlot1 · Manon C. W. Spaander3 · Frederic Gottrand4 · Rene M. H. Wijnen1 · Luigi Dall’Oglio2Received: 8 April 2020 / Accepted: 24 July 2020 © The […] LEARN MORE
A lot of patients with esophageal atresia have a very noisy cough. The German patient organization for children and grownups with esophageal atresia (KEKS) now provides their member with little informative leaflets in credit card format. They let other people […] LEARN MORE
EURORDIS (a non-governmental patient-driven alliance of patient organisations) organise the first Rare Disease Week in the lead up to Rare Disease Day 2021 (28 February). The goal of this event is to empower, rare disease patient advocates, with knowledge and […] LEARN MORE
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The 7th international Conference on EA will be held in Istambul, Turkey, in 2025.