Resources for your doctors and for EA families

Many specialists (particularly adult specialists) may not be very familiar with this condition, and its potential complications. You may wish to suggest they look over this review:

Long-Term respiratory complications of congenital esophageal atresia with or without tracheoesophageal fistula: an update
Kovesi T.    Children’s Hospital of Eastern Ontario and the University of Ottawa, Ottawa, Ontario, Canada.
Dis Esophagus. 2013 May;26(4):413-6. doi: 10.1111/dote.12061.

Another, more recent review of long-term outcome of EA in people throughout Finland has been published by:

Long-term results of esophageal atresia: Helsinki experience and review of literature.
 Sistonen SJPakarinen MPRintala RJ
Pediatr Surg Int. 2011 Nov;27(11):1141-9. doi: 10.1007/s00383-011-2980-7. Epub 2011 Sep 30.

TOFS  leaflet prepared by TOFS  (the UK EA Support Group ). This leaflet aims to support in particular GPs and adult EA patients in understanding and discussing their condition.
It refers to the ongoing issues which adult EA patients may experience.

TOF Adults_Health Issues_pdf

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Resources for Patients and Families

Resources available on the Internet for families include:

TOFS British Support Group https://tofs.org.uk/home.aspx

AFAO French Support Group  http://www.afao.asso.fr 

06/08/2018