France: a national register for esophageal atresia patients

9 July 2016

A National Esophageal Atresia Register was created in 2008 by the National Reference Center for Esophageal Congenital Abnormalities created in 2006. Primary goal was estimation of live birth prevalence in France. A national network of surgeons and pediatricians was initiated and entire teams dealing with esophageal atresia accepted to participate in an exhaustive national register.

A questionnaire was validated by a national committee and data were centralized in our center. Scientific exploitation showed that such database is useful for health authorities as for medical professionals. Live birth prevalence in France is at 1.9/10,000 births. Prenatal diagnosis is more common but its effect on prevalence is not yet fully understood. Associated congenital abnormalities are frequent and major malformations with termination of pregnancy can influence prevalence.

Rony Sfeir1 Laurent Michaud1 Duyti Sharma2 Florence Richard3 Frédéric Gottrand1
1 Division of Gastroenterology, Hepatology and Nutrition, Department
of Pediatrics, Jeanne de Flandre Children’s Hospital, Lille University
Faculty of Medicine, Lille, France
2Pediatirc Surgery, CHRU Lille, Lille, France
3 Public Health, CHRU Lille, Lille, France

Address for correspondence Rony Sfeir, MD, Division of Pediatric Surgery, Jeanne de Flandre Children’s Hospital, Lille University Faculty of Medicine, 1 av Eugene Avinee 59037 Lille Cedex, Lille 59000, France

A national esophageal atresia register

Leave a Reply

Your email address will not be published. Required fields are marked *