Support groups actions

ABeFAO Family Day in Pairi Daiza

25 April 2018

Great ( and sunny!) day for our ABeFAO Family Day in Pairi Daiza (Belgium)  on 22/4/2018! A good opportunity to meet our new members, to share questions and experiences.. and to enjoy our children’s large smiles! Thanks to all our […] LEARN MORE

A patient led, international study of long term outcomes of esophageal atresia: EAT 1.

27 June 2017

Abstract INTRODUCTION: Long term outcomes of esophageal atresia (OA) are poorly understood. The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula support groups (EAT), a collaboration of patient support groups aimed to define patient reported long term outcomes and quality of […] LEARN MORE

Report on gastro-esophageal reflux from Shelley

26 August 2015

Dear fellow-sufferers of esophageal atresia, I am 18 years old and was born myself with a long-gap esophageal atresia. In my last year of high school I have to write a diploma thesis. Since I am now more concerned about […] LEARN MORE