Support groups actions

A patient led, international study of long term outcomes of esophageal atresia: EAT 1.

27 June 2017

Abstract INTRODUCTION: Long term outcomes of esophageal atresia (OA) are poorly understood. The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula support groups (EAT), a collaboration of patient support groups aimed to define patient reported long term outcomes and quality of […] LEARN MORE

Report on gastro-esophageal reflux from Shelley

26 August 2015

Dear fellow-sufferers of esophageal atresia, I am 18 years old and was born myself with a long-gap esophageal atresia. In my last year of high school I have to write a diploma thesis. Since I am now more concerned about […] LEARN MORE

TOF/OA Leaflets now available in Arabic!

26 August 2015

A  TOFS member Mayyada Wazaify  translated some of the TOFS leaflets into Arabic! Mayyada is Professor of Pharmacy Practice at the University of Jordan and also Mum to five year old Mohammad, born with TOF/OA. Mohammad has needed six oesophageal […] LEARN MORE