Support groups actions

ABeFAO Family Day in Pairi Daiza

25 April 2018

Great ( and sunny!) day for our ABeFAO Family Day in Pairi Daiza (Belgium)  on 22/4/2018! A good opportunity to meet our new members, to share questions and experiences.. and to enjoy our children’s large smiles! Thanks to all our […] LEARN MORE

Useful TOF/OA Terms in various languages

14 August 2017

Terminology Glossary English Turkish Terminology Glossary English Spanish Terminology Glossary English Russian Terminology Glossary English Polish Terminology Glossary English Italian Terminology Glossary English German Terminology Glossary English French Terminology Glossary English Dutch

A patient led, international study of long term outcomes of esophageal atresia: EAT 1.

27 June 2017

Abstract INTRODUCTION: Long term outcomes of esophageal atresia (OA) are poorly understood. The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula support groups (EAT), a collaboration of patient support groups aimed to define patient reported long term outcomes and quality of […] LEARN MORE