Support groups actions

Useful TOF/OA Terms in various languages

14 August 2017

Terminology Glossary English Turkish Terminology Glossary English Spanish Terminology Glossary English Russian Terminology Glossary English Polish Terminology Glossary English Italian Terminology Glossary English German Terminology Glossary English French Terminology Glossary English Dutch

A patient led, international study of long term outcomes of esophageal atresia: EAT 1.

27 June 2017

Abstract INTRODUCTION: Long term outcomes of esophageal atresia (OA) are poorly understood. The Federation of Esophageal Atresia and Tracheo-Esophageal Fistula support groups (EAT), a collaboration of patient support groups aimed to define patient reported long term outcomes and quality of […] LEARN MORE

Report on gastro-esophageal reflux from Shelley

26 August 2015

Dear fellow-sufferers of esophageal atresia, I am 18 years old and was born myself with a long-gap esophageal atresia. In my last year of high school I have to write a diploma thesis. Since I am now more concerned about […] LEARN MORE